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All Kinds of Friends, Even Green! (Children Section)
by Senisi, Ellen
In school, Moses, and the rest of his class are given the assignment of choosing a friend to write about. As he wonders which person to choose, he thinks of his ... More
Approach to Treatment of the Baby
by Boehme, Regi
Author Regi Boehme, a certified occupational therapy instructor in neuro-developmental treatment (NDT), offers practical treatment ideas in this revised edition of her workshop manual. The material in this 52-page book is ... More
by Peacock, Judith
This series describes a number of diseases that can affect young people and suggests ways teens can cope with each illness. The books describe how each disease or illness affects a ... More
Cerebral Palsy A Complete Guide for Caregiving
by Miller, Freeman & Bachrach, Steven
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions ... More
Childhood Cancer-Guide to Solid Tumor CANCER
by Janes-Hodder, Honne & Keene, Nancy
This second edition of the most complete parent guide available, features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and ... More
by Plaut, Thomas
Asthma can be a frustrating, disruptive, and frightening condition, especially in children. But with the help of this wonderful aid, families can learn to manage symptoms and gain control. The need ... More
by Hinchcliffe, Archie
Hinchcliffe, a consultant physiotherapist trainer, presents material he uses in his courses for therapists in the Middle East, Afghanistan, and Africa, but hopes the information will also be useful to people ... More
Children with Cerebral Palsy A Parent's Guide 2nd Edition
by Geralis, Elaine
"Children with Cerebral Palsy" is the first book that families of children with cerebral palsy should read. The second edition offers a complete spectrum of information and advice about cerebral palsy ... More
Children with Complex and Continuing health Needs
by Taylor-Hewitt, Jaqui
Experiences of children, families and care staff More
Children with Complex and Continuing health Needs
by Taylor-Hewitt, Jaqui
Focusing on the real life experiences of children and their families, this book provides valuable insight into living with complex and continuing health needs.The author highlights the importance of seeing each ... More
by Lutkenhoff, Marlene
The complete introductory guide for parents, filled with up-to-date information and empowering emotional support. Topics include pre-and postnatal diagnosis, orthopedic, neurological, and urological concerns, physical therapy, bowel management, and education. ... More
Children With Traumatic Brain Injury
by Schoenbrodt, Lisa
Tens of thousands of children — infants through teens — experience traumatic brain injury (TBI) each year. This must-have reference provides parents with the support and information they need to cope ... More
Children with Visual Impairments
by Holbrook, Cay
This is the newly expanded and updated edition of the compassionate and practical guide for parents of children with visual impairment. Written by a team of professionals and parent-experts, the 2nd ... More
Children with Visual Impairments 2ND Edition
by Holbrook, Cay
This is the newly expanded and updated edition of the compassionate and practical guide for parents of children with visual impairment. Written by a team of professionals and parent-experts, the 2nd ... More
Conquering Your Child's Chronic Pain
by Zeltzer, Lonnie
A nationally recognized leader in the field of pediatric pain management, Dr. Lonnie K. Zeltzer offers an invaluable guide to control the pain that plagues your child, from headaches to arthritis, ... More
Coping with Mild Traumatic Brain Injury
by Stoler, Diane & Hill, Barbara
Mild head injury is one of the most commonly misdiagnosed health problems in the United States today. Because many injuries do not show up in conventional tests, the best defense is ... More
Damaged Angel An Adoptive Mother Discovers The Tragic Toll of Alcohol In Pregnancy
by Buxton, Bonnie
Part heartfelt memoir, part practical guide, Damaged Angels recounts Bonnie Buxton's struggles to raise an adopted daughter whom she didn't realize was afflicted with fetal alcohol disorder. Her book also offers ... More
Developing Mid-Range Control and Function in Children with Fluctuating Muscle Tone
by Boehme, Regi
Author Regi Boehme, a certified occupational therapy instructor in neuro-developmental treatment (NDT), offers practical treatment ideas in this revised edition of her workshop manual. The material in this 58-page book is ... More
by Kaufman, Miriam
Profiles of, and honest answers for, teenagers with chronic illness or disabilities that make their live a real challenge. Practical advice and straight talk on questions many teenagers would be too ... More
Fantastic Antone Succeeds! Experiences in Educating Children with Fetal Alcohol Syndrome
by Kleinfeld, Judith & Wescott, Siobhan
This is a wonderful positive book for parents and caregivers of FAS/FAE children. I have read so much negative and disheartening material on the subject of fetal alcohol syndrome which gave ... More
by Streissguth, Ann
Compelling and easy to understand, this book explains the medical and social issues surrounding fetal alcohol syndrome (FAS) and fetal alcohol effects (FAE). Compassionately written by the expert psychologist who conducted ... More
Fetal Alcohol Syndrome and Alcohol-Related Neurodevelopmental Disorders
by Malbin, Diane
Trying differently rather than harder: Fetal alcohol syndrome and alcohol-related neurodevelopment disorders. Fetal Alcohol Syndrome Disorder (or FASD) is a physical disability that rarely has any visible physical symptoms. Written ... More
Fetal Alcohol Syndrome Diagnosis, Epidemiology, Prevention, and Teatment
by Institute of Medicine
A committee of the US Institute of Medicine sets out specific criteria for determining whether a child suffers from fetal alcohol syndrome, so that practitioners can avoid relying on estimates of ... More
Fetal Alcohol Syndrome: Guidelines for Referral and Diagnosis
by Department of Health and Human Services
This document represents the deliberations of clinicians, researchers, parents, and representatives of governmental and non-governmental organizations, whose main goals were to increase the identification of individuals with fetal alcohol syndrome using ... More
by Bucker, J.M.H.
This text helps to recognize potential growth problems. It covers the procedures of measuring children, recognizing abnormal growth, and data management of the conditions. One chapter contains 35 case histories, including ... More
Hospice Care for Children 2nd Edition
by Dailey-Armstrong, Ann & Zarbock, Sarah
Written for those involved in the care of dying children, this book describes different models of care, the developmental stages of children's understandings of death, the crucial aspects of pain and ... More
Hydrocephalus: A guide for patients, families and friends
by Toporek, Chuck & Robinson, Kellie
Hydrocephalus is a life-threatening condition often referred to as "water on the brain" that is treated by surgical placement of a shunt system. This book educates families so they can select ... More
I Can't Walk But I can Crawl Living with Cerebral Palsy
by Ross, Joan
Joan is an adult with cerebral palsy who grew up when compulsory education was not in place for all children. Her memories of her childhood before inclusion, her development as a ... More
by Joanna Cerazy MEd, Sandra Cottingham PhD
This groundbreaking study reveals the continuing danger that lead contamination presents to health-particularly in the earliest stages of life. Disclosure about the lead content in house paint, gasoline, canned food, and ... More
Let's Talk About Being in a Wheelchair (children Section)
by Apel, Meanie
This book discusses the different reasons people use wheelchairs as well as how they work and how to use one for the first time. Whether the student is faced with this ... More
Living With Tuberous Sclerosis
by Sheffield, Chris & Patrick
A collection of 25 stories of TSC (tuberous sclerosis) children which will touch the heart. A book that seeks to inform and support families of children who suffer with TSC. ... More
Making Sense of Your Child's Hearing Loss
by Perry, Scott
A resource for parents of children who have a hearing loss. The book covers what parents need to know, or may be curious to know more about. Chapters have information on ... More
by Burnett, Gail
the book begins with case studies of two families who suffered from Muscular Dystrophy. The authors then discuss the causes, effects, diagnoses, treatments,and ongoing research as is applicable to Muscular ... More
by Osofsky, Audrey
A young boy with muscular dystrophy goes to a special camp where he is paired with an intelligent golden retriever who performs everyday tasks that are too difficult for the physically ... More
by Wade, Nicholas
For more than twenty years, the Science Times section of The New York Times has been the source of cutting-edge scientific information for readers throughout the world. The award-winning Times writers ... More
by Moore, Keith
Old at Age 3 is the story of Zachary Moore who had a rare genetic aging condition called Progeria. Old at Age 3 is an all-angles look into this extraordinary life ... More
Pain in Children & Adults with Developmental Disabilities
by Oberlander, Tim & Symons, Frank
For clinicians working with patients who have disabilities and may not be able to self-report, recognizing and correctly interpreting expressions of pain can be a challenge. The first to synthesize research ... More
Palliative Care for Infants, Children, and Adolescents
by Carter, Brian; Levetown, Marcia
Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children ... More
Pediatric Brain Injury A Practical Resource 2nd Edition
by Sellars, Carole; Vegter, Candace; Ellerbusch, Susan & Pickering, Erin
Pediatric Brain Injury, Second Edition is a pragmatic and insightful resource book for use by families, clinicians, and educators to provide recovery information for children who demonstrate acquired brain injury. The ... More
Pediatric Brain Injury The Special Case of the Very Young Child (1)
by Sellars, Carole; Vegter, Candace & Ellerbusch, Susan
This book on treating and living with infants, toddlers and preschoolers with traumatic brain injuries examines the themes that have recently emerged in the pediatric brain injury field, including the sobering ... More
Prader-Willi Syndrome A practical Guide
by Waters, Jackie
An examination of the cognitive, medical and psychological aspects of educating a child with Prader-Willi Syndrome. Practical advice is given for every part of the schooling process, from classroom management to ... More
Raising A Child with a Neuromuscular Disorder
by Thompson, Charlotte
Thompson (pediatrics, University of California in San Diego) draws upon her experience treating children with muscular dystrophy, spinal atrophy, congenital and mitochondrial myopathies, and Charcot-Marie- Tooth to present, not only the ... More
Raising a Child with Arthritis: A parent's guide
by The Arthritis Foundation
Parents practical guidance on raising children with juvenile arthritis, juvenile lupus or other rheumatic diseases. More
by Marschark, Marc
The second edition of this guide offers a readable, comprehensive summary of everything a parent or teacher would want to know about raising and educating a deaf child. It covers topics ... More
Recognizing & Managing Children with Fetal Alcohol Syndrome/Fetal Alcohol Effects: A Guidebook
by McCreight, Brenda
For any parent or professional who needs to work with children with fetal alcohol syndrome/fetal alcohol effects (FAS/FAE), this important guide offers practical advice and solid information for dealing with its ... More
Relieve Your Child's Chronic Pain
by Krane, Elliot & Mitchell, Deborah
Approximately ten million children are living with chronic pain. Most people would be surprised at such numbers, but for the parents of these children, the challenge of helping a pain-stricken child ... More
by Rubalcaba, Jill
Huntington's chorea, or Saint Vitus' dance, a progressive dementia that eventually kills the sufferer, is the diagnosis as Melanie's mother slips further into madness. In spite of the family's prominent standing ... More
by Hilden, Joanne; Tobin, Daniel & Lindsey, Karen
critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their ... More
Spinabilities: A Young Person's Guide to Spina Bifida
by Lutkenhoff, Marlene
A mixed bag of essays by a variety of health care professionals considers a wide range of issues related to spina bifida in an effort to help those who have it ... More
Supporting Children with Cerebral Palsy
by David Fulton Publishers
Off-the-shelf support containing all the vital information practitioners need to know about Cerebral Palsy, this book includes - Explanation of difficulties associated with Cerebral Palsy - Developing concentration and listening skills ... More
Supporting the Child and the Family in Paediatric Palliative Care
by Brown, Erica & Warr, Brian
Brown, head of research and development at Acorns Children's Hospice in the UK, overviews good practice in caring for terminally ill young people and their families. She provides guidance on key ... More
Teaching Motor Skills to Children with Cerebral Palsy and Similar Movement Disorders
by Martin, Sieglinde
Written by an experienced physical therapist, this practical guide gives parents the keys they need to help their child with cerebral palsy or another developmental delay master gross motor skills beginning ... More
The Adult Guide Of The Life Stages Program
by Tuberous Sclerosis Alliance
The Life Stages Guide Program has been developed by the Tuberous Sclerosis Alliance to provide resource information to people with TSC and their families for many of the non-medical challenges that ... More
by Dorris, Michael
Michael Dorris' story of his adopted son Adam, born with fetal alcohol syndrome (FAS), explores the enormous scope of the disease and parallels one father's endless battle to overcome the problem. ... More
The Care and Feeding of Indigo Children
by Virtue, Doreen
Indigo children are bright, intuitive, and sometimes self-destructive individuals who are sometimes labeled as having ADD or ADHD. Now a spiritual psychotherapist explores the psyche of these special kids and offers ... More
by Siegel, Daniel
This book goes beyond the nature and nurture divisions that traditionally have constrained much of our thinking about development, exploring the role of interpersonal relationships in forging key connections in the ... More
The Early Years Guide of Life stage Program
by Tuberous Sclerosis Alliance
The Life Stages Guide Program has been developed by the Tuberous Sclerosis Alliance to provide resource information to people with TSC and their families for many of the non-medical challenges that ... More
by Neill, Catherine; Clark, Edward B; Clark, Carleen
Written by doctors for the parents of patients, this book uses case studies, questions and answers, illustrations, and detailed descriptions to explain the causes of heart disorders, their diagnosis, their effects ... More
by Grimm, James
Having never uttered a word in his life, 40-year-old Jim Grimm profoundly and joyfully touches the lives of all who come to know him. Born with cerebral palsy and unable to ... More
by Boehme, Regi
Regi Boehme, a noted instructor of Neuro-Developmental Treatment (NDT), offers practical treatment ideas in this 55-page revised edition of her workshop manual. This valuable, easy-to-use reference tool gives therapists an understandable ... More
The Transgender Child: A Handbook for Families and Professionals (Paperback)
by Stephanie A. Brill; Rachel Pepper
This comprehensive first of its kind guidebook explores the unique challenges that thousands of families face every day raising their children in every city and state. Through extensive research and interviews, ... More
Tratamiento de la Paralisis Cerebral y del Retraso Motor
by Levitt, Sophie
Las parálisis cerebrales representan un grupo de trastornos motores de infinita variedad y diferentes grados de severidad. Su designación como trastornos motores es en gran parte arbitraria, y la situación clínica ... More
by Stenson, Carol; Daley, Steven E.; Holladay, Kris &Farmer, Patrica
When you are overwelmed with questions about Trisomy 13 this book will help answer some of those questions, to share insights of parents of children with trisomy 13 and to give ... More
Trisomy 18 Handbook for Families
by Stenson, Carol; Daley, Steven E.; Holladay, Kris &Farmer, Patrica
A guidebook to help answer questions about Trisomy 18 (Edward syndrom) More
Tuberous Sclerosis Complex 3rd Edition
by Gomez, Manuel, Sampson, Julian, Whittemore, Vicky
Tuberous Sclerosis is a genetic disease characterized by lesions of the skin and central nervous system, seizures, and sometimes sever mental retardation. Infants with this disease may appear overactive, autistic, or ... More
Un Enfermo En Casa Como convivir Y actuar con un Enfermo Cronico
by La Rebotica
En España hay millones de afectados por enfermedades crónicas o de larga duración y multitud de familias que deben enfrentarse a situaciones imprevisibles y difíciles. Un examen permanente para familias que ... More
by Kramer, Laura
Uncommon Voyage, first published in 1996, documented Laura Shapiro Kramer’s search for alternative treatments for her son Seth’s cerebral palsy in the face of an uncomprehending medical establishment. In this revised ... More
What to do about your Brain Injured Child
by Doman, Glenn
Twenty thousand families from over one hundred nations have brought their children to the Institutes for the Achievement of Human Potential. Glenn Doman, founder, has brought real hope thousands who have ... More
What to do about your Brain Injured Child Revised Edition
by Doman, Glenn
Twenty thousand families from over one hundred nations have brought their children to the Institutes for the Achievement of Human Potential. Glenn Doman, founder, has brought real hope thousands who have ... More
by Institute of Medicine
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, ... More
William-Beuren Syndrome Research, Evalutation & treatment
by Morris, Colleen; Lenhoff, Howard & Wang, Paul
Williams-Beuren syndrome (WBS) is a genetic condition characterized by low IQ, cardiovascular malformations, dysmorphic facial features, and a striking pattern of behaviors, weaknesses, and strengths, such as musical and verbal abilities, ... More
Your Child with Arthritis: A family guide to caregiving
by Tucker, Lori; Denaro, Bethany; Stebulis,A Judith & Schaller, Jane
Your Child with Arthritis is designed to help parents and other family members with the challenging task of raising a child with a rheumatic disease. The authors — two pediatric rheumatologists, ... More
Your Child's Eczema, Practical and Easy-to-follow Advice
by Jones, Maggie
Explores different types and causes of eczema, discusses conventional treatments for the condition, and suggests alternative therapies to alleviate children's distress More
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Our Partners
Contact Us:
830 NE 47th Avenue
Portland, OR 97213
Voice: 503-215-2429
Toll Free: 800-833-8899 ext. 52429
Fax: 503-215-2478
swindells@providence.org
Get our RSS feeds:
The Child Disability Connection